Posted: 04-09-2025
Dallas had the cough assist last night around midnight, but we’ve fortunately moved on to an “as needed” basis. She seems to be managing her coughs and keeping her airway on her own pretty well now.
We were happy to welcome Brooklyn from Music Therapy again, as she is able to play light guitar music and sing some of Dallas’s favorite songs, including APT. (ballad style) – a song by ROSÉ & Bruno Mars that Dallas ran around singing for MONTHS (“Ah-Puh-Tah-Puh-tet“) without us having a clue what it was!
PT/OT crew was back in again today and worked with Dallas (fully supported) sitting on the edge of the bed. Lots of stimulating and tapping above knees created a lot of good reflex response, that they didn’t see yesterday –a small improvement!
PM&R came in to start the conversations of next steps in her recovery process. We’ll continue 2 doses per day of Amantadine, as it’s been shown to have positive effects on brain injury patients, and the side effects are very low. It was suggested to look into Botox injections in her calf’s, as it can help to ease the muscle tone/stiffness – for upwards of 90 days – which could help with recovery efforts and PT sessions. PM&R noted that they didn’t see any reason Dallas wouldn’t recover well, which was positive to hear and we hope they’re right. In our minds, she’s done it before and can do it again!
Dr. Fan from the neuro team stopped by and reaffirmed that she believes Amantadine will continue be beneficial during the entire recovery process. She also recommended that Levocarnitine be added to her supplements, as it helps to act as a transporter of sorts for nutrition and other good stuff to and from the cells. That first dose of Levocarnitine was given around 8:30 this evening.
Dr. Fan also believes that keeping a more traditional feeding schedule during the day will be the most ideal, as it will allow her to get the best rest at night. Also, when the stomach is empty that is when vitamins and nutrients gets absorbed. Food at night can disrupt sleep as it creates extra work for the body when digesting. Ideal to have no food between 10pm and 2am.
Dallas SMILED today! We saw a small movement in her left cheek this morning and wondered if it was a smile or grimace (her movements are so tiny it’s hard to tell). Then she did it again and Heather asked if she was smiling… she used her eyes to tell her yes! 😃
“Keep smiling, because life is a beautiful thing and there’s so much to smile about.” – Marilyn Monroe
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Best thing in the world to see your child smile!
It all sounds so positive to me. I heard recently (from a neurologist) that music therapy was the recommended treatment. Maybe it was on NPR.
Dallas looks so good. She is so big now. Her skin is so pretty, and her eyes are very pretty too. Hang in there, You are doing a great job. God bless you and all the medical helpers.
Reyn
The beauty of a child’s smile is a true gift.
Been reading every post and saying prayers every day for sweet Dally. Hang in there, you got this!
🤗🤗🤗 love reading these every morning to start my day. Always brings a smile here lately 🩷🙏
Every day I jump to your posts to catch the good news. The Smile does it for me! Incredible news. Everything tells me spring has come! All great news! Keep fighting, little Dallas! You are loved!
I love this positive update!!! Keep it up
Sweet Dallas!!💞 We love you!!
💞🙏💞🙏💞🙏💞
A smile 😊. Beautiful.
APT is definitely the tune to respond to 🤩
Glad to hear of her steps towards recovery, music is so healing, glad a smile came from her heart to her Momma. Hope they can bring in canine healing pups,may every day bring her back to good health..sending gentle kisses and hugs, and lots of love, and always my prayers.
Glad to hear some encouraging news! Dallas is quite missed at school and we continue to pray for a full and speedy recovery! She is definitely a tough cookie and has the strength to pull through! Sending love to your family!
Following your daily progress. So happy to hear Dallas smiled. A child’s child and laughter is the best medicine for mom and dad. Keep improving little girl. Prayers for all.