In May of 2022, Dallas was hospitalized just before her 2nd birthday and had a diagnosis of Acute Necrotizing Encephalopathy (ANE). We spent nearly 2 months between UNC Children’s Hospital, followed by pediatric inpatient rehabilitation at ECU. She’s made tremendous leaps and bounds in her nearly full recovery from the 2022 ANE episode, and we’re grateful for her strength and determination. She experiencing another episode of ANE on March 29, 2025 and we spent just over two months at UNC Children’s Hospital. We’re now at Levine Children’s Hospital in Charlotte, NC where Dallas is in their inpatient pediatric rehabilitation program working on getting stronger and focusing on her recovery.
February 28, 2026
It has been a long time since we’ve shared a Dallas update. Not because there hasn’t been anything to say. Mostly because life has been full. Busy. Heavy at times. Hopeful at others. We are still juggling appointments, therapies, work, investment properties, and all the regular rhythms of being a family. There are still a lot of plates spinning over here. But today felt important. Today is Rare Disease Day.
When you have a child with a rare disease, a day like this carries a different weight. It is about awareness, yes. But it is also about belonging. It is about normalizing the fact that so many families are quietly navigating diagnoses most people have never heard of. Acute Necrotizing Encephalopathy, or ANE, is one of ... Continue Reading
Please know that we greatly appreciate your support and words of hope and encouragement and hope that you'll use this website (rather than calls/texts) as a resource for updates – we likely will not have the time or bandwidth to personally respond to all the inquiries otherwise.
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If you'd like to read her old blog entries, you can visit the Caring Bridge website. To learn more about Acute Necrotizing Encephalopathy, please visit https://aneinternational.org
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