Posted: 04-02-2025
Happy to share that Dallas’s back MRI came back normal yesterday—one less thing to worry about.
The resident doctor came in this morning for an evaluation. Heather mentioned that Dallas had been coughing a bit overnight, and we’re still scratching our heads over it. She was virus-free when she was admitted, but hospitals have a way of introducing new variables. The good news is that her lungs sound clear. We also realized she wasn’t turned or repositioned overnight, so we’re making sure she’s on a proper schedule for that moving forward. No more PICU—she’s being transferred to a regular bed as soon as one is available. That’s a step in the right direction!
PT was in today and did a great job working with her—pushing just the right amount. Every bit of movement matters, and they’re being mindful of her limits while still encouraging progress.
During rounds, a few updates:
- She’ll now be turned every two hours.
- Adjusting bowel regimen to see if we can get things moving.
- Spine MRI results were normal (worth repeating!).
- Continuing steroids and IVIG, with tapering to begin tomorrow.
- Feeds will transition to a more structured schedule instead of continuous feeds—hoping this helps her body get back to a more natural rhythm.
- Flushness in her face is still being monitored, but we think it’s looking a bit better.
- Notably, she’s responding better to stimulus—especially with her left arm. She’s starting to pull away from stimuli by bending at the elbow. This is a BIG win!
And speaking of wins… Dallas had a mega poop blowout today. I’m choosing to believe this is a major victory for her belly—some much-needed relief!
On the more glamorous side of hospital life, Nurse Katie worked some more magic on Dallas’s hair. She and Heather managed to get all but two tiny knots out, then braided it into pigtails. We picked up a silk pillowcase for her pillow to keep it from matting again. A small but meaningful comfort!
Heather spent some time helping Dallas to doodle and practice her writing. Though not really “awake” for it, practicing writing and learning her letters are things that she really enjoys doing!
We did try switching her to feeding to more regular and larger intervals, but her belly wasn’t quite on board with that plan, and she ended up vomiting. So, back to slow continuous feeds for now. We’ll give her more time and try again when she’s ready. Not uncommon, just part of the process.
Through it all, Dallas keeps fighting, we keep advocating, and we hold onto hope. Tomorrow, we try again! ❤️
“Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying, ‘I will try again tomorrow.’” — Mary Anne Radmacher
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God bless little Dallas. I’m glad to hear of all the positive things that happened today. Hang in there Brett and Heather. There are many prayer warriors out here sending powerful prayers for Dallas and for the both of you to. Love you guys.
Congratulations on the small but BIG things 🙌👏🏼 So happy things are moving in the right direction. Continued thoughts, prayers, and hugs! 🙏🩷
Sorry to hear Dallas is going through this again.
Prayers for all of you.
Continued healing for little Dallas
Sending healing thoughts and prayers her way
Continuing to hold Dallas and your family up in prayer.
Fantastic news, with slow progress but moving forward. Dallas is a fighter and is so fortunate to have you and Heather working, advocating, and cheering for her. Thoughts, prayers, love, and hugs are being sent your way.
Love y’all. Holding Sweet Dallas and you both in our hearts.
That’s an awesome update!!🤗
Yay Dallas!!🎉
That’s so encouraging to hear..dad and mom got her the best and fastest care possible, sounds like all systems are going in the right direction. Hope she will be back to where she was soon. Every day love is a miracle..Dallas is your special sweet miracle.
Prayers for your strong, brave baby girl🙏🏻🙏🏻 and prayers for her amazing parents 🙏🏻🙏🏻❤️❤️❤️
We’re praying for y’all. So happy she’s improving❤️❤️
Glad for the good news in the update. I am right down the street..
Your strength, your continuing to reach for each positive moment is a victory for Dallas. She doesn’t know it yet but she is incredibly blessed to have you, Brett, and Heather for her parents. I am amazed at your devotion and attention to the smallest detail. God comfort you all and give you strength. Kate K.
Brett and Heather, your little girl is SO blessed to have dedicated advocates in her corner! And how blessed we all are to know Dallas…I’m in awe of how much fight can be contained in such a small body. You are all three on our family’s mind and we are cheering for every victory, big and small. You’re strong, brave, and capable-all three of you!
Brett, again, I want to tell you how good your writing is. It is an advantage for those of us who want Dallas’s news. I am so happy that you and Heather are seeing progress. Even if it is baby steps that you notice, it is great to hear. You and Heather seem to work together very smoothly, and that is wonderful for Dallas and both of you. God bless you all! Love. Reyn