Posted: 04-23-2025
It was a very long night last night. Heather noticed that Dallas seemed bothered early in the evening, and it continued past midnight. By then, her heart rate had climbed to a consistent 130–140s, and the nurses were called in. Her temperature was also elevated to 99.1, and she just seemed very uncomfortable — and then she let out a yell (an actual loud yell), far louder than we’ve ever heard her voice in weeks.
By 2 a.m., Dallas was still uncomfortable. She had a BM and then vomited. Zofran (a medication for nausea and vomiting) was given, and an EKG machine was brought in to monitor her heart, which was now sitting steadily in the 150s–160s. I drove back over from the Ronald McDonald House, and we stayed up pretty much until daylight trying to figure out what was going on. Somehow, Dallas eventually settled into sleep — even with her heart rate still consistently around 160.
Through the morning, her other vitals (blood pressure and O₂) remained pretty normal and consistent with her baseline. Blood panels were completed, a viral panel was done, and a chest X-ray was also performed. No viruses were detected. Bloodwork showed a lower red blood cell count and a higher white blood cell count — though the doctors didn’t seem too concerned by the numbers — and the X-ray showed that both the central line and NG tube were still well-positioned. Her nurses also changed out the central line bandages, since vomit had gotten on them last night.
They were able to get a little fluid/discharge from her pre-auricular pit (a little dimple near her right ear that she was born with); it seemed tender to the touch yesterday and a bit swollen and red. They’ve started her on an antibiotic for it, just like her pediatrician did back in January when we noticed similar swelling.
Later in the day, she had her CHG bath and settled in for a nap. We didn’t do her PLEX therapy today, as the team wanted a clearer idea of what was causing her heart rate to stay so elevated — she essentially completed a marathon, heart-rate-wise, for nearly 18 hours. PopPop drove up for some much-needed relief (we haven’t slept in a couple of days), and we were relieved to see her heart rate consistently in the “one-teens” as we were heading out.
The nurses plan to collect a urine sample this evening to run a culture, checking for a potential UTI, as we still don’t have a clear picture of what caused the heart rate spike all night and into the day. Our hope is that her heart rate stays down and that she and PopPop can have a peaceful, restful evening — we all need it. We’re optimistic that she’ll be in a better position for PLEX tomorrow and, if so, could potentially have it again on Friday — getting back on schedule.
“And I will stay with you through the night / And I will guide you through the fight.” — Sleeping at Last, “Saturn (Piano Version)”
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Praying for you guys and for healing for Dallas
Sending prayers for peaceful sleep for you all.
Praying for you all and love you 🙏♥️
Thankful for your PopPop support. Rest, eat, stay hydrated. May the medical team have the right antibiotics and relief is clear. HUGS
Praying for a restful night’s sleep for everyone.
Dear God, Please be with our beautiful Dallas and help heal her very soon. We miss her in our lives! 🙏💕🙏
Prayers are continuing! Sending positive thoughts, love and hugs. Hopefully you all will get some much-needed rest and continued improvement for Dallas 🙏🏻❤️
Continued prayers for sweet Dallas! And you all!!💝 I know some rest would help!!!
Love you guys!!!
💞🙏💞🙏💞
I pray that all went well last night and that everyone received the rest they needed. Dallas is so strong, and she’s fighting to get better.
So sorry for the swing in symptoms. How very unsettling. Praying for resolution and answers. Hope you all get some rest.
Keeping you all in my thoughts and prayers.
I know you all are exhausted. Her little body is trying to hard to fight this awful illness. Stepping up prayers for you both, Dallas, the entire medical team, grandparents who are so devoted. I feel so helpless. I can’t imagine how you’re handling this. I pray for your strength and comfort. Please….God! Please!!!
You all must be very tired, such a long night, was glad for her yell!
I pray she does well with the next plex application, and her bp is within a good range. Hope the antibiotic helps her ear bump. Love you all, sending gentle hugs and kisses..she’s a fighter, bless you sweet Dallas.
Dear God, we thank you for the gift of life and for the love you show us. We come to you today with a heavy heart, praying for Dallas, who is in the hospital. We ask for your healing touch, your strength, and your comfort for them. May they be free from pain and suffering, and may they feel your peace and love. We also pray for their parents and family, that they may be surrounded by your grace and peace during this difficult time. We trust in your healing power and your loving care. Amen.”