Posted: 04-11-2025
Dallas had a bit of a restless night last night, between diaper changes, coughing, and overnight feeds. She had a cough assist early this morning, but the RT (Respiratory Therapist) indicated that unless Dallas coughs, or the machine encourages her to cough, it wouldn’t help much. Throughout the day she did have some productive coughs, which usually calmed things down pretty quickly afterward. We feel that the effectiveness of her cough might directly depend on her level of fatigue and energy, as to whether she’s able to better clear it.
During the morning rounding, there wasn’t too much to report – her vitals are still looking good; they planned on switching to 4 bolus feeds today, so long as she handles them well. That said, she did have a couple of spit-up moments this afternoon, which seemed to be related to her potentially gagging while clearing mucus during coughs. Her nurses listened to her immediately following both events, and noted that her breathing and lungs were both sounding clear.
We look each day for changes and noted that she yawned occasionally. While not much to bat an eye out normally, it’s another small step in the right direction for her recovery to be able to do so. During a couple of those, we also heard a bit of a sigh, which is the first vocal noise we’ve heard. At one point in the day, we feel that she wanted so badly to talk, but doesn’t have it in her… yet!
PT/OT worked with her and left some floor mats and a therapy bench that we could use in between sessions. We’re excited about the floor mat, not just because we can better snuggle with her outside the hospital bed, but we can get her on her belly for some tummy time easier and get some stretches through her hips. Although still fully supported, PT noted that they felt she had a little bit better neck control today.
The highlight of the day was busting out – getting her out of the room to stroll through the halls in her chair. Even for those 15–20 minutes, it was so nice for her to get out of the room 4 walls and be able to tour the floor untethered from all the wires, leads, etc. Tomorrow is another day, and we’ll continue looking for the tiny changes and improvements that show us she’s moving in the right direction.
“The best way out is always through.” — Robert Frost
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Dallas and your family are in our prayers.
Go Dallas go! Keep up the good work. We know you can do it. Hope you are all holding on to the love everyone has for the three of you.
Hoping Dallas can cough up the mucus soon, glad she went for a stroll, nice to get away from her room. Praying this journey will be behind her soon, baby steps right now, may she have leaps in the near future..your all thought of each day, with lots of love, gentle hugs and sweet kisses.
Oh the walk around in the hallways is always a GREAT sign!
I will keep my prayers coming. I will miss her at the Easter egg hunt & seeing her with the Easter Bunny. But if she comes home soon we can always work something out so you have pictures with the bunny
Please know that your little girl is loved even by people she’s never met in person💜Hugs to all of you💕
Sending you guys big hugs! Yay for yawns!! 😌❤️
Sending you all so much love and just as many prayers. Dallas is a little fighter but I hate that she has to go through this 💕💕💕 hugs guys. You are amazing parents and doing such a great job!
Continued prayers for my beautiful Granddaughter Dallas!!💝
💞🙏💞🙏💞🙏💞
Sending prayers to Dad, Mom and sweet Dallas. You all are on my mind and in my prayers. Stay strong.
Wonder news! So glad she can be moved out of the room. Praying for all of you.💕
I know you can’t wait for the day when your update is re: going home. We’ll all praying for that day!