In May of 2022, Dallas was hospitalized just before her 2nd birthday and had a diagnosis of Acute Necrotizing Encephalopathy (ANE). We spent nearly 2 months between UNC Children’s Hospital, followed by pediatric inpatient rehabilitation at ECU. She’s made tremendous leaps and bounds in her nearly full recovery from the 2022 ANE episode, and we’re grateful for her strength and determination. She experiencing another episode of ANE on March 29, 2025 and we spent just over two months at UNC Children’s Hospital. We’re now at Levine Children’s Hospital in Charlotte, NC where Dallas is in their inpatient pediatric rehabilitation program working on getting stronger and focusing on her recovery.
September 24, 2025
It’s been a little while since we’ve shared an update on our girl, so figured one was overdue. We’re happy to say that Dallas’s calendar is now fully booked—and for once, that’s a very good thing. We FINALLY have what feels like all the therapy players in motion: PT, OT, Speech, and Feeding are all active and in place.
In addition, we’ve welcomed a couple of new therapies into the mix. Dallas has started MNRI (Masgutova Neurosensorimotor Reflex Integration) and Cranial Sacral massage therapy. MNRI is a movement and sensory-based therapy approach that helps integrate immature or unresolved primitive reflexes, which can improve motor skills, cognition, sensory processing, and even emotional regulation. The cranial sacral massage therapy, meanwhile, uses light touch on the skull, spine, and ... Continue Reading
Please know that we greatly appreciate your support and words of hope and encouragement and hope that you'll use this website (rather than calls/texts) as a resource for updates – we likely will not have the time or bandwidth to personally respond to all the inquiries otherwise.
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If you'd like to read her old blog entries, you can visit the Caring Bridge website. To learn more about Acute Necrotizing Encephalopathy, please visit https://aneinternational.org
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