In May of 2022, Dallas was hospitalized just before her 2nd birthday and had a diagnosis of Acute Necrotizing Encephalopathy (ANE). We spent nearly 2 months between UNC Children’s Hospital, followed by pediatric inpatient rehabilitation at ECU. She’s made tremendous leaps and bounds in her nearly full recovery from the 2022 ANE episode, and we’re grateful for her strength and determination. Dallas is currently experiencing another episode of ANE and we’re at UNC Children’s Hospital. She has what we feel to be some of the best of docs and medical team evaluating and providing her with top-notch care.
May 17, 2025
A quiet, steady day—the kind we’re always grateful for.
Kristin from Speech came in today and worked with Dallas on her swallows. There was a bit of a grimace when she introduced an ice chip, and we’re pretty sure it was just too cold for her liking. Aside from that moment, she continued to do well with the practice. We’ll take those small steps.
Rounding was short today, but came with a couple of good updates. Her PPI medication—which helps manage stomach acid and reflux—has now officially dropped to one dose a day. This change has been ... Continue Reading
Please know that we greatly appreciate your support and words of hope and encouragement and hope that you'll use this website (rather than calls/texts) as a resource for updates – we likely will not have the time or bandwidth to personally respond to all the inquiries otherwise.
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If you'd like to read her old blog entries, you can visit the Caring Bridge website. To learn more about Acute Necrotizing Encephalopathy, please visit https://aneinternational.org
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